Sunday, August 31, 2008
Due to some complications with the surgery, they ended up leaving Kenny on the breathing tube overnight. So this morning when I got back to the hospital, he had recently had the breathing tube removed and was coming off of all of the drugs given to him the day before. Those effects can make a person have a very foul mouth and Kenny was no exception. Many times, it's fairly comical, as it was today, but he also had a very strong attachment to me today and I seemed to be the only one he wanted there to calm him down. Waking up with a tube in your throat and not being able to ask how your surgery went was very scary for him, as it would be for anyone and it took me a few hours to calm him. Add to that not remembering large chunks of time in the last week....well, you get the idea.
I spent my day tending to his every need, happily doing many things most would rely on a nurse to help with, watching his monitors to make sure he was breathing well without the aid of oxygen so he wouldn't have to sleep with an awful mask on tonight and generally, brining him up to speed on the last week of his life. In the quiet moments when he was comfortable and resting, it was so amazing to look across the room at him sleeping peacefully and knowing that he will be walking out of Northwestern in a few days a healthy man on the road to recovery.
We spoke about looking at life much differently now and how much we appreciate just being able to see each other. We looked at pictures of our sweet Charlie and his amazing smile and we can't wait to get home to hold him tight.
Kenny is such a strong guy...he found that the typical IV painkiller makes him sick to his stomach when we were at the hospital in McHenry so he is only controlling the pain with regular old Tylenol. They really don't want him throwing up because of the trauma to his brain in the last 6 days, as you can imagine and he is willing to just take the Tylenol and an ice pack to the neck to avoid further pain. I can't imagine the pain he is in...two surgeries to the brain in 6 days and you are just taking Tylenol???!!! I can't explain how proud I am of him.
Saturday, August 30, 2008
It's been a very long day...the surgery went way longer than expected, but he's going to be just fine. I'll blog later with the details...
Thank you to everyone for all the good thoughts, wishes, prayers and offers to help us. It means the world to both of us. I need to get some sleep now...so I can be well rested to spend a wonderful day with my amazingly strong husband.
Thursday, August 28, 2008
I spoke to the nurse at 5am and Kenny had a good night. He got lots of sleep, which is good because he's only been able to sleep about 15 minutes at a time. The nurse kicked me out to get really sleep in my bed about 1130pm and he had been sleeping well last night when I was with him. The nurse said he was up a few times and is still getting up to go to the bathroom well without dizziness and is moving really well. He has also had two meals now that have sat well with his stomach. He actually asked for Coke with dinner last night. :) She said he talked about how good I am to him and how much he loves Charlie and she was impressed with his sweet words and how with it he is. She said the confusion in dates and times and what all is going on that we see (and scares me a little), is really minor given everything he has and is going through.
Pray for a call soon from Northwestern that we can start moving down there so we can start getting answers and working on making Kenny better.
Wednesday, August 27, 2008
It seems he will be transfered to Northwestern today to be put under the care of a doctor that we keep hearing more and more good things about. Kenny and I both feel confident that this is the right thing for him and that this doctor will help him. It's unclear right now if they will release him and then have him check back in later for surgery, or if they will keep him until he has the 2nd surgery to remove the tumor. Northwestern needs to start running a series of tests on Kenny to determine exact what the tumor is affecting right now, so that they can begin the game plan for removal. A side note...the belief is that this tumor is not cancer. 95 - 98% of pituitary tumors are not cancerous.
I will be staying on and off at Kenny's sister's house in the city. We are so lucky to have them so close to Northwestern. Once we know further how long Kenny will be there, Charlie will probably come down there with me also.
Kenny...about 10pm Tuesday night. He asked me if I had taken a picture of him that day and I said no. He wanted a picture...to show everyone...he's going to be ok.
Tuesday, August 26, 2008
Charlie is an amazing little boy. He is so good...sleeps 8 hours each night now which is wonderful especially given the circumstances. He has just been so good for his Grammy the last few days that I have been with Kenny. And his other big accomplishment this month is his wonderful smile that he shares so often now. Happy 2 months baby Charlie...your Mommy and Daddy love you so!
This picture was taken yesterday morning, pre-surgery. Charlie and his daddy...even in the hospital he could find a comfy spot with Daddy to nap.
And here's Charlie's 2 month picture. Smiling...and you can't see it, but his shirt says "I love Daddy." And he does...I brought him to see Kenny for a few minutes in ICU today and it truly brighten Kenny's face to see Charlie and give him a few kisses and belt out a little tune for Charlie.
Kenny is doing very well for about 24 hours out of surgery. He's been resting and looking up to smile at me or say few words and then fall asleep. He should be moving out of ICU in the morning and possibly released on Friday. Our neurosurgeon here would like us downtown at a hospital early next week getting lined up for his second surgery. Northwestern is ready to take him anytime and begin running necessary tests on him to understand what they will be working with. I've spent a good part of the day on the phone getting his arraingements made to move down to Northwestern where we have been seen in the past by a doctor that we keep hearing more and more good things about. Kenny and I have talked about it and we feel good about Northwestern and hope that they can be helpful in removing the tumor.
Kenny asked me to thank everyone for their phone calls and prayers. They mean the world to both of us. I tell him about every message, email and phone call I have gotten.
My mom noticed in visiting with him today that even though he's sleeping, he wakes up and makes a very positive, funny, Kenny-like comment about something. His positive attitude is still there and we both know that he will get through this.
Wednesday, August 20, 2008
This is where I laid Charlie down in his crib last night at 930pm. In the middle of the crib, a little towards the back side of it.
This is where I found Charlie at 530am this morning when he woke up after sleeping 8 hours. How did he get here??? Sometimes he wiggles around like a worm, but this is crazy!
Tuesday, August 19, 2008
Since moving into this house, we've done alot of new plantings in existing landscape beds and a new one too. I've really enjoyed it and Kenny has really enjoyed it when I don't drag him into my projects! The picture above is a beautiful flowering bush we have along our walkway...actually we have several of them. I've been meaning to photograph them and I happen to catch a butterfly on one last week.
Something make me realize that all our pictures of Charlie are of him sleeping, quite and awake or smiling. So, since this is kind of my way of scrapbooking/journaling for Charlie, I thought I would take a few of him crying too. He does do that!
He really likes to get his arms and legs going sometimes while crying too!
And Charlie and Scott...and Kenny's head in the picture too!
Monday, August 11, 2008
A partial smile...they are sort of hard to catch on camera! And his scratch he gave himself on his cheek. Those finger nails of his are dangerous and impossible to keep dull so he doesn't scratch himself...but we think he's trying to look a like a little tough guy!
Friday, Charlie and I went to visit some friends that had a baby girl less than 24 hours after Charlie was born. Little Camryn is such a cutie and her big brother Jason is such a sweet, smart guy!
Charlie relaxing at Jason and Camryn's house.
Doesn't Charlie just look like a stud!!??
Jason and Charlie
Saturday night we went to Highwood for a cruise night and met up with both sets of our parents, my brother and many friends!
And Sunday we went to Uncle Jim's for some YUMMY ribs!!
Charlie's first name is Charles...and here he is with the living Charles' that he is named for. Daddy (Charles Kenneth II), Grandpa (Charles William) and Baby Charlie.
Friday, August 8, 2008
Here he is...sitting in "his chair." His chair plays music, white noise and vibrates. He loves his chair and usually falls asleep in it. Does it look like his sleeping?? :)
So, I decided to take him for his first walk through our neighborhood since it wasn't too warm yesterday. We walked and walked and every time I peaked in at him, he was wide awake. Movement ALWAYS makes him fall asleep!
The last 10 minutes of the stroller ride, he finally fell asleep. I quietly and gently brought the stroller in the house to let him sleep. It last 10 more minutes...and then he woke up.
Finally about 8pm last night, he pooped out. He woke up about 45 minutes later to eat and then we put him to bed for the night. Kenny and I had high hopes for him sleeping a good 6 hours or so since he was lacking in naps during the day. That didn't happen, he likes to eat too much...but as you can see below...he's catching up on the naps today!
(And no Uncle Ted, that is not a dress he's in...it's a sleep sack...a safe way to "put a blanket on him" and let him sleep with out worrying about him.)
I think he likes his doggie friend...the toy on the car seat...but this picture makes me wonder!
Wednesday, August 6, 2008
Our little guy...
AJ, Kate and Hannah.